MEDIA

Find our latest press releases, media coverage, and official campaign updates here. For interviews or media enquiries, please reach out using the contact details below.

Official Press Releases

Official Statement - Released Wednesday 28th June 2025

"It’s Now or Never" – National Outcry Ahead of NDIS Pricing Changes on 1 July

On 1 July, new NDIS pricing changes will come into effect, and unless action is taken, people with disabilities will lose the support they rely on to live safely, with dignity, and with choice.

The It’s Now or Never campaign is calling this what it is: a national crisis.

“We’re hearing from parents, therapists, and people on the scheme who are afraid about these changes. The 2025–26 Price Guide might look like a budget win on the surface, but underneath, it’s cutting the support that people rely on every day. And it’s putting lives at risk.” - Eleanor Quinn, It’s Now or Never campaign coordinator

In under 3 weeks, the campaign has sparked national media attention, drawn thousands to their live events, and supported getting over 52,000 signatures on a community-wide petition.

Yet many in power have stayed quiet, as the damage is beginning to unfold.

From this Tuesday 1 July, people will lose access to the support they rely on, immediately, and in life-altering ways.

Doors are already shutting. Families are scrambling.People with disability are being left in limbo. And too many decision makers are staying silent.

However, this movement refuses to be ignored, because the consequences of doing nothing will be deafening. People will be turning to hospitals because the support they needed from the Scheme never came. Parents and carers walking away from their jobs because there’s no one else to step in. And Australians’ faith in our country’s promise of a fair go for all will wither away.

The campaign is calling for:

A pause on the 2025–26 pricing changes
Fair indexing to keep providers viable
Genuine co-design, with lived experience at the centre
A future system that is transparent, accountable, and built to last

As the window for change narrows ahead of the 2025–26 Price Guide rollout, the It’s Now or Never campaign has entered its second phase: The 11th Hour.

This next push calls on Australians to:

Email their MP using an existing tool to keep things accessible for everyone
Share the campaign with 11 people; friends, family, colleagues, community
Keep the momentum going so decision-makers can’t ignore what’s at stake

Because at this 11th hour, silence isn’t an option.

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Principal Media Contact:

Eleanor Quinn
0433 564 497 | team@itsnowornever.com.au

Links:

It’s Now or Never www.itsnowornever.com.au

Petition - https://chng.it/QLTCpwx5fh

Instagram: https://instagram.com/itsnoworneverndis

Quotes:

The following quotes can be attributed to the It’s Now or Never team as below:

“Participants are already feeling sting of the reforms since the Act was passed, now this. How many of us have to die for the voices of the disability community to be heard by our own government?”

“This is not just budget line items or cost saving measures. It is people’s lives at stake, so tell me how much is that worth?

Giarne Ashby, Disability Advocate and Occupational Therapist

“Before the NDIS, my family had to remortgage our home to keep my niece Alice alive. Since then, we’ve had hope; real, steady support we could count on. Now that support feels less certain, and I worry what that means for families like mine. It’s hard to understand how we ended up back here. Please don’t let this happen again.”

David Dinca, Physiotherapist and Allied Health Advocate

When the NDIS was created, the world looked to us as leaders in disability inclusion. What will our legacy be now? That we let our most vulnerable end up in hospital beds because we no longer wanted to support them? Not on my watch. Australians deserve better”

Brooke Bos, Campaign Coordinator and PBS Practitioner

“We’re hearing from parents, therapists, and people on the scheme who are afraid about these changes. The 2025-26 Price Guide might look like a budget win on the surface, but underneath, it’s cutting the support that people rely on every day. And it’s putting lives at risk.”

Eleanor Quinn, Campaign Coordinator

Official Statement - Tuesday 15th July 2025

It’s Now or Never: Disability Sector Calls on NDIA Leadership to Step Forward and Reverse Pricing Changes

With less than 10 days until Parliament resumes, disability providers, participants, and families across the country are demanding accountability from NDIA leadership, not silence.

The It’s Now or Never campaign, which mobilised tens of thousands of Australians in opposition to the recent NDIS pricing changes, is entering Phase 3: Now Means Now. This next phase focuses squarely on leadership transparency and the urgent reversal of pricing decisions that are harming participants and dismantling services across the country.

Since the changes came into effect, services have disappeared, waitlists have grown, and vital supports have been cut, particularly in regional and remote areas. Yet the NDIA has not publicly addressed these impacts, nor has it addressed the months-long absence of its CEO, the highest-paid public servant in the country. Who is running the show? Who will step up to take accountability and ownership of the price guide decisions?

“If a provider made changes that harmed participants and then disappeared, they’d be shut down. We’re asking NDIA leadership to show up, acknowledge the harm, and commit to a real conversation” – David Dinca, Allied Health Advocate

Our Demands to the NDIA and the Government

Leadership accountability from the NDIA about who’s behind the helm and the decisions made.
Transparency about the evidence that cutting supports to NDIS participants is sustainable.
A public statement from NDIA leadership addressing the 56,000+ of you that have spoken out.

A reversal of the pricing changes to allow for proper co-design no later than the 31st of July

Our Calls to Action

As Parliament prepares to sit starting 22nd July, the campaign is calling for:

1. Professionals Bodies and Advocacy Groups to take the pledge and join us Friday 18th at a round table.

Professional bodies and advocacy groups are formally invited to join a sector-wide roundtable at 3PM Friday, 18 July to discuss a unified response to the crisis. We’ve heard the frustration from your members throughout the country. Many have expressed that a fragmented, individual approach is no longer working, and that participants are paying the price. We understand that when the sector stands divided, participants are the ones who lose. We are stronger when we stand together.

We are calling for a shared commitment to leadership, participant outcomes, and sector integrity, and co-ordinated action.

We will be operating with transparency about which professional organisations have committed to a united, coordinated sector response, because the Australian community deserves to see who is showing leadership when it matters most.

This is an opportunity for the sector to model the accountability, collaboration, and co-design we expect from the systems we work within.

Professional bodies who have taken the pledge to stand united will be featured on our home page.

Because real leadership is visible. Real leadership is shared. It’s Now or Never.

2. Providers to Prepare for Action

Providers across the country are being invited to organise collectively, share stories of impact, and prepare for coordinated action. A town hall for all providers will be held at 3PM Friday, 25 July This session will outline next steps, prepare for coordinated action if the NDIA and government do not meet our deadline.

It’s not too late to unite, but time is running out.

3. Our July Deadline:

If NDIA leadership fails to publicly respond, and in conjunction with the government fail to reverse the changes by the 31st of July, a national demonstration will be held in August, featuring symbolic visual action, media visibility, and a collective call for reversal of the pricing changes and a move towards true co-design. We are not going anywhere.

“We’re calling for a full reversal of the pricing changes until meaningful, transparent engagement with the sector and disabled Australians can take place. This is a chance to co-create a solution that works for disabled Australians AND the bottom line, but it starts with everyone working together” - Brooke Bos, Campaign Coordinator

The It’s Now or Never campaign started as a grassroots response made up of NDIS participants, providers, and advocates. It is now a national movement, and a test of public trust.

Now means now.